CC, who will turn four in May, was diagnosed with Methachromatic Leukodystrophy last year. “We had never heard of this word before and it instantly became a part of our every single thought, plan, prayer – just everything. The doctor said she had 3-5 more years to live. We were devastated and heartbroken – and still are,” shares CC’s mom. The Casey family continues to show grace and strength as they live each day understanding CC’s prognosis. They strive to keep life “normal” for their family. Their goal now is to keep CC as comfortable as they can and build as many memories as possible for their family. They find those opportunities and that support in The Sandbox.